Parents’ view on issues and problems of managing type 1 diabetes in children and adolescents in everyday life: results of the all-russian sociological survey “VOSHOD”

Introduction.  Proper  education of patients and  their  environment is essential in achieving  compensation for type 1 diabetes mellitus  (T1DM).

Aim. Identifying problems  in T1DM management in children and adolescents in daily life and assessing  the needs for educational activities for children and parents.

Materials and methods.  A sociological  survey with the participation of 508 parents  of children and adolescents with T1DM was conducted in February-April 2022 in 7 federal districts of the Russian Federation. The electronic questionnaire contained 80 questions on various areas of disease  management.

Results. Age of children from 3 to 18 years (average 10.7 ± 3.64 g); gender  of children female – 52.2% (265), male – 47.8% (243); T1DM experience – from 1 month  to 15 years (average  3.9 ± 3.2 years). Parents  face problems  of glycemic variability in children (19.5%), difficulties  in adjusting  insulin dosages  (14.4%), catering  in schools/kindergartens (21.0%), preferential provision of insulins  and medical  devices  for self-control of glycemia (17.1%), age characteristics of childhood  and adolescence (14.9%), psychological  problems  (24.4%), indifference  of medical  workers  (10.8%), difficulties  of examination for glycated  hemoglobin (36.3%); low physical activity of children (57.9%), lack of knowledge  and skills of proper monitoring  of glycemia during physical activity (46.6%), inaccessibility  of sports (22.7%). Parents  receive knowledge  in schools of diabetes (37.6%), from endocrinologists  (42.5%), dia chats  in instant  messengers (70.5%), social networks  (59.6%), Internet  resources  (77.2%) are considered an important source  of information.  91.3% of parents  need  constant replenishment of knowledge,  they consider  it important to educate children and form a responsible attitude towards  their health.

Conclusion. The current  continuing  education of patients with T1DM and their environment in the management of the disease in everyday life, the solution  of issues  of timely and full preferential provision of children  and adolescents with T1DM medical devices  for monitoring  glycemia  and  insulin  preparations will contribute to increasing  the  effectiveness of therapy,  reducing the risk of complications and improving their quality of life.

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